These last couple of weeks were rough for Philip and me. It began with our final IVF consult, which did not go awesome. Here are some things that happened:
1. The cheerful woman who came in to take my ultrasound chirped at me: "Let's see if that cyst went away!" To which I replied, "Uhhhmm, I don't think I have a cyst?" She frowned and claimed that my nurse had just told her we were checking for a cyst. I've never had an ovarian cyst in my life, to my knowledge.
2. We found out our stimulation injections were going to start a week later than I thought, and I had to stay on birth control for another week.
3. My nurse tried to rush through all the injection instructions while Philip was in the bathroom. I interrupted her: "Can we please wait for my husband to get back? He's the one who will be administering these injections."
4. After being shuttled from an exam room to a nurse's office, we were shuttled to the checkout area, then shuttled BACK to the nurse's office so that, at our request, our doctor could give us a wham-bam overview of preimplantation genetic screening (PGS) of embryos, a test the doctor had never brought up to us as an option.
5. After all of this stellar customer service, we went back to the checkout area, where the clerk asked us how much we owed. "I don't know?" I replied. She made a phone call and then said, "That'll be $11,710." <commence choking on my own saliva>
Would you like to know what is stressful? ALL OF THAT. Being caused unnecessary alarm about an imaginary cyst. Getting my carefully plotted timeline thrown into the dumpster. Getting overwhelmed with information when my partner is taking a quick pee. Getting herded from room to room like cattle. Getting the world's most rushed explanation of a very complex, controversial testing procedure. And then being charged an astronomical amount of money for all of the above.
The appointment threw me into a massive funk, and in the midst of that funk, we had to make progress on two giant homework assignments: Figure out what credit card to apply for that would yield the best rewards for spending upwards of $11K, and read/decipher a pile of jumbled papers about PGS so we could let our doctor know asap if we wanted to do it.
Oh, and by the way, in the middle of that, Philip was trying to get his mom signed up for health insurance via the Affordable Care Act before the deadline, AND he was working on filing our taxes.
So what happened was, we started bickering. A tense moment here, a moment of lashing out there.
Things came to a head on a Saturday night. We were out at a pub crawl in our neighborhood for a friend's birthday, and I didn't want to be there. I just wasn't in the mood to be celebratory and crazy with a bunch of people I didn't really know. Plus, we'd been trying to cut out alcohol consumption ... Philip wasn't in the mood to babysit me, and on the walk home, our patience ran out. There was yelling in the streets. There was sweater throwing. There was stomping on said sweater.
When we got home at 2 a.m., the quarrel escalated to even higher comical telenovela levels. We were both drunk and tired. At the height of the argument, I ran out to my car barefoot with no license like I was just going to drive away. (Where the eff was I going to go?) Philip followed in his underwear, angrily hurling my shoes up onto the carport and standing behind my car to block my path. The standoff lasted for awhile before I agreed to come back inside if he would get my shoes off the carport roof. He did.
The next day, we laughed about the dramatic fight, but we were war-weary. Usually weekends are our time to reconnect and recharge, but we went into the following workweek completely drained, and the bickering continued. My closest ally was distant and cold. The loneliness I felt was crushing.
On a Thursday night, Philip went to see a friend perform in concert while I ran a 5K race. I tried to meet up with him afterward, but I had the venue wrong. I stood inside Austin's looking in vain for a group of people who were at Stardust. Back in my car, I started crying maniacally. I was bawling so hard I had to pull over. I let the sobs just wrack me; I wailed as loud as I wanted. I cried until I was weak and shaky.
Is this when it happens? When the infertility becomes too much? When the couple doesn't recognize each other anymore? When they finally give up on each other?
Philip texted me, offering to leave and bring us dinner.
I replied: "No don't leave. I tried. I've cried what's left of my makeup off. I'm smelly. I'm going to take a shower and go to sleep. I feel really bad for dampening your evening. I'm lonely and unhappy and that doesn't make me an appealing wife."
He wrote back, "I'm coming home."
He decided to keep trying, to continue fighting for us, like he has since the very earliest days of our relationship. He had plans with some friends on Saturday, but he canceled so that the two of us could reconnect. We slept in, made love, made breakfast. We booked a kayaking tour near Cocoa Beach, and after, we sat overlooking the water enjoying nachos and mixed drinks. We prioritized each other; we prioritized relaxation. We traveled the distance back into each other's space. And in the following days, he lovingly studied all the medication instructions and bravely injected me with very high doses of artificial hormones.
Monday, April 21, 2014
Thursday, March 27, 2014
SCOPING OUT MY INSIDES
Would you like to hear about my hysteroscopy? OK!
So I was very nervous. Everyone kept telling me, "Oh, it's no big deal," which made me mad.
"It IS a big deal!" I huffed to Philip.
"No one can win with you," he replied. "You'd be upset if they told you it was a major deal and scared you."
Which was true.
I took great care to pick out my surgery-day outfit: the baggiest, comfiest, frumpiest sweatpants and hoodie. I took extra care with my socks. The socks are the only personal item you leave on for a procedure like this, and it's like being initiated into a very select sorority to wear your first pair of infertility socks. I chose a fuzzy black pair with snowflakes. Yes, those were the perfect socks, good job.
At 10 p.m. the night before, I remembered that the nurse had instructed me to douche. Have you ever douched before? It is the most abusive thing you can do to yourself, on a number of levels. I didn't happen to have any douches sitting around, so off to the CVS we drove. The CVS was closed. "Well," I said, "the rapey Walgreens it is." I literally witnessed a robbery at this Walgreens once. At this point, Philip and I got into a fight. Because that is what you do when your nerves are on edge about an impending surgery and you're off buying a douche late at night from the rapiest drug store in town.
Also I am trying to find as many excuses as possible to say the word "douche."
So we studied the douches for awhile until we found the right one. Then Philip acted squeamish about carrying the box. No, I was not having that.
"I'M the one who has to douche, AND I'm the one who has to undergo the surgery -- I think you can handle carrying the box!" I said indignantly.
"I'm not only going to carry it," he said. "I'm going to hold it out to the cashier dude face-up like this." And that is what he did.
This particular douche was medicated, which means you mix in some iodine, which turns the liquid in the bottle a lovely shade of dark purplish-brown. Then you grit your teeth and slowly squirt it up into your hoo-ha via a very phallic-looking plastic wand, which feels cold and icky, and then the brown liquid trickles back down into the toilet. I have no idea why anyone would voluntarily choose to do this.
My douching mission complete, we went to bed and arose promptly at 6:30 the following morning so we could be to our clinic by 7:30. A very kind surgery nurse led me to a little room with lockers to undress and don a handsome hairnet and some paper booties over my awesome socks. I also had to take a pregnancy test, which always makes me roll my eyes.
Then I laid in a hospital bed in a small curtained area for awhile and stared up at the ceiling, where a light tile showed a colorful ocean scene full of fish and other cheerful marine creatures. A nurse came by to explain the procedure to me, and another nurse came to insert my IV while Chicago's "After All that We've Been Through" played tenderly over the muted sound system.
I was also handed some post-op instructions. I was not, under any circumstances, to:
1. "Drive a car, if a child, no bike riding, skate boards or gym sets."
2. "Drink alcoholic beverages (not even beer)."
3. "Make any important decisions such as signing legal documents."
Not even beer?! And there goes the big house closing I had planned for the same day as my hysteroscopy. :/
Philip got to join me after awhile, and he told me about an episode of Inside the Actors Studio playing on the TV in the waiting room, in which James Lipton was very self-congratulatorily sharing about a book that Matthew McConaughey had personally sent him.
"And James Lipton was challenging us," said Philip, "to go back and watch all of Matthew McConaughey's romantic comedies and realize what an amazing actor he's been ALL ALONG."
The anesthesiologist came in and gave me a quick rundown of what to expect from the anesthetic. And then it was go time. I walked myself into the OR, clutching my hospital gown closed behind me, and climbed up to lay down on the table.
The staff immediately got to work. A tube started blowing air into my nose, and my legs went up into the most serious stirrups I'd ever seen. "I like your socks," said one nurse, and I remember a brief feeling of victorious pleasure at the compliment. Then they started to strap me in, which felt claustrophobic for about one second before I started to slip off into dreamland and suddenly felt cozier, calmer and more tucked in than I ever have in my life.
Moments later I came to sudden consciousness and cried, "I'm still awake!"
"We're all done, dear," said the nurse.
Next thing I knew, I was laying back in the hospital bed in my curtained corner, feeling drowsy and crampy but overall pretty damn chill.
"Your heart rate is a lot slower now than before the procedure," Philip said. The nurse came and asked if I wanted soda crackers, water and Tylenol, and I nodded. She brought me this tiny bottle of water with a straw in it, and I sipped it quietly like a 5-year-old.
Time passed slowly or quickly -- I wasn't terribly with it. Then it was time to get up and change back into my clothes. I walked back into the little locker room in a bit of a daze and looked at myself in the mirror. I had electrodes stuck to the bare skin on my chest. I allowed myself a brief moment of self-pity, because really, I did look pitiful in my hairnet and electrodes, and who would have ever thought I'd have to go through all this nonsense just to MAYBE have a baby someday?
Then I snapped out of it and peeled the electrodes off. I got changed without further incident, until I somehow jostled a plastic basket of menstrual pads on a shelf and it tumbled to the floor, spilling maxis all over the place like some sort of slapstick act. I cleaned up the mess, shaking my head, and exited.
Outside the locker room, the nurse showed Philip and me some images of the inside of my uterus, which kind of looked like a fleshy pink balloon. Then we walked out into the waiting room, where I encountered my friend Alison, who is also seeking treatment at my clinic, and burst into hilarious laughter. "Fancy meeting you here!" I bellowed, while everyone else in the room looked on with puzzlement.
Then we drove home, and I proceeded to wolf down a blueberry muffin and some apple juice and then sleep for four hours on the couch. I felt some pretty bad period-like cramps and had a little light bleeding, but that was the extent of the aftermath. I was back to work the next day.
Later when we met with our RE, she said she had removed a "skin tag," as well as some "redundant tissue" inside my uterus, but that it was nothing out of the ordinary, and the tissue shouldn't have affected my fertility. They sent the tissue off to a lab to be biopsied, and results came back normal.
I wasn't supposed to have sex for a week, but eff that noise: I wasn't going to let my last chance to try to conceive naturally get thrown into the trash, especially since I had heard of other people who got pregnant naturally after having had a hysteroscopy. So we tried, and my hopes were soaring, because I had also started acupuncture again, as well as Chinese herbs and supplements with hopeful names like "Fertilaid" and "Pregnitude."
But, alas, nope. My period came right on schedule, and with it the usual tears, alcohol drinking and angry prenatal-vitamin boycotting. But then as always, I got my shit back together, and now we move onward full steam ahead to IVF Land.
So I was very nervous. Everyone kept telling me, "Oh, it's no big deal," which made me mad.
"It IS a big deal!" I huffed to Philip.
"No one can win with you," he replied. "You'd be upset if they told you it was a major deal and scared you."
Which was true.
I took great care to pick out my surgery-day outfit: the baggiest, comfiest, frumpiest sweatpants and hoodie. I took extra care with my socks. The socks are the only personal item you leave on for a procedure like this, and it's like being initiated into a very select sorority to wear your first pair of infertility socks. I chose a fuzzy black pair with snowflakes. Yes, those were the perfect socks, good job.
At 10 p.m. the night before, I remembered that the nurse had instructed me to douche. Have you ever douched before? It is the most abusive thing you can do to yourself, on a number of levels. I didn't happen to have any douches sitting around, so off to the CVS we drove. The CVS was closed. "Well," I said, "the rapey Walgreens it is." I literally witnessed a robbery at this Walgreens once. At this point, Philip and I got into a fight. Because that is what you do when your nerves are on edge about an impending surgery and you're off buying a douche late at night from the rapiest drug store in town.
Also I am trying to find as many excuses as possible to say the word "douche."
So we studied the douches for awhile until we found the right one. Then Philip acted squeamish about carrying the box. No, I was not having that.
"I'M the one who has to douche, AND I'm the one who has to undergo the surgery -- I think you can handle carrying the box!" I said indignantly.
"I'm not only going to carry it," he said. "I'm going to hold it out to the cashier dude face-up like this." And that is what he did.
This particular douche was medicated, which means you mix in some iodine, which turns the liquid in the bottle a lovely shade of dark purplish-brown. Then you grit your teeth and slowly squirt it up into your hoo-ha via a very phallic-looking plastic wand, which feels cold and icky, and then the brown liquid trickles back down into the toilet. I have no idea why anyone would voluntarily choose to do this.
My douching mission complete, we went to bed and arose promptly at 6:30 the following morning so we could be to our clinic by 7:30. A very kind surgery nurse led me to a little room with lockers to undress and don a handsome hairnet and some paper booties over my awesome socks. I also had to take a pregnancy test, which always makes me roll my eyes.
Then I laid in a hospital bed in a small curtained area for awhile and stared up at the ceiling, where a light tile showed a colorful ocean scene full of fish and other cheerful marine creatures. A nurse came by to explain the procedure to me, and another nurse came to insert my IV while Chicago's "After All that We've Been Through" played tenderly over the muted sound system.
I was also handed some post-op instructions. I was not, under any circumstances, to:
1. "Drive a car, if a child, no bike riding, skate boards or gym sets."
2. "Drink alcoholic beverages (not even beer)."
3. "Make any important decisions such as signing legal documents."
Not even beer?! And there goes the big house closing I had planned for the same day as my hysteroscopy. :/
Philip got to join me after awhile, and he told me about an episode of Inside the Actors Studio playing on the TV in the waiting room, in which James Lipton was very self-congratulatorily sharing about a book that Matthew McConaughey had personally sent him.
"And James Lipton was challenging us," said Philip, "to go back and watch all of Matthew McConaughey's romantic comedies and realize what an amazing actor he's been ALL ALONG."
The anesthesiologist came in and gave me a quick rundown of what to expect from the anesthetic. And then it was go time. I walked myself into the OR, clutching my hospital gown closed behind me, and climbed up to lay down on the table.
The staff immediately got to work. A tube started blowing air into my nose, and my legs went up into the most serious stirrups I'd ever seen. "I like your socks," said one nurse, and I remember a brief feeling of victorious pleasure at the compliment. Then they started to strap me in, which felt claustrophobic for about one second before I started to slip off into dreamland and suddenly felt cozier, calmer and more tucked in than I ever have in my life.
Moments later I came to sudden consciousness and cried, "I'm still awake!"
"We're all done, dear," said the nurse.
Next thing I knew, I was laying back in the hospital bed in my curtained corner, feeling drowsy and crampy but overall pretty damn chill.
"Your heart rate is a lot slower now than before the procedure," Philip said. The nurse came and asked if I wanted soda crackers, water and Tylenol, and I nodded. She brought me this tiny bottle of water with a straw in it, and I sipped it quietly like a 5-year-old.
Time passed slowly or quickly -- I wasn't terribly with it. Then it was time to get up and change back into my clothes. I walked back into the little locker room in a bit of a daze and looked at myself in the mirror. I had electrodes stuck to the bare skin on my chest. I allowed myself a brief moment of self-pity, because really, I did look pitiful in my hairnet and electrodes, and who would have ever thought I'd have to go through all this nonsense just to MAYBE have a baby someday?
Then I snapped out of it and peeled the electrodes off. I got changed without further incident, until I somehow jostled a plastic basket of menstrual pads on a shelf and it tumbled to the floor, spilling maxis all over the place like some sort of slapstick act. I cleaned up the mess, shaking my head, and exited.
Outside the locker room, the nurse showed Philip and me some images of the inside of my uterus, which kind of looked like a fleshy pink balloon. Then we walked out into the waiting room, where I encountered my friend Alison, who is also seeking treatment at my clinic, and burst into hilarious laughter. "Fancy meeting you here!" I bellowed, while everyone else in the room looked on with puzzlement.
Then we drove home, and I proceeded to wolf down a blueberry muffin and some apple juice and then sleep for four hours on the couch. I felt some pretty bad period-like cramps and had a little light bleeding, but that was the extent of the aftermath. I was back to work the next day.
Later when we met with our RE, she said she had removed a "skin tag," as well as some "redundant tissue" inside my uterus, but that it was nothing out of the ordinary, and the tissue shouldn't have affected my fertility. They sent the tissue off to a lab to be biopsied, and results came back normal.
I wasn't supposed to have sex for a week, but eff that noise: I wasn't going to let my last chance to try to conceive naturally get thrown into the trash, especially since I had heard of other people who got pregnant naturally after having had a hysteroscopy. So we tried, and my hopes were soaring, because I had also started acupuncture again, as well as Chinese herbs and supplements with hopeful names like "Fertilaid" and "Pregnitude."
But, alas, nope. My period came right on schedule, and with it the usual tears, alcohol drinking and angry prenatal-vitamin boycotting. But then as always, I got my shit back together, and now we move onward full steam ahead to IVF Land.
Friday, February 21, 2014
GUESS WHO'S BACK
<Walks hesitantly onto stage. Taps microphone. Clears throat. "Hello? Is this thing on?" Looks out at empty auditorium. Takes a deep breath ...>
Sooooo, I'm back. As un-pregnant as ever, but not quite so angry. I've spent the last, hmm, let's see, seven months feeling pretty guilty about virtually yelling "Fuck everything and everyone!" and then dropping the microphone and disappearing off the face of the Internet. It's how I was feeling at the time, and honesty is good, but I could have said it all a little more nicely. For example, "Hi, kind people who actually spend their precious free time reading my ramblings, I think I need a little break from this."
So, I'm sorry. I apologize. I don't blame you if I'm talking to no one now, as you probably gave up checking to see if I've updated long ago.
For some reason I've been feeling the urge to write again. They say time heals all wounds, which isn't exactly true, but it does allow space for some reflection and distance from the injury. My thoughts have started to well up inside my brain once again, and I'm beginning to crave an outlet.
I was just so mad when that last IUI didn't work. Like just furious. It hurt so much more than any other disappointment we had faced thus far. I don't know why. And I just had to be done for awhile. I wanted to focus on my new position at work. I wanted to have a normal, festive holiday season -- not a miserable one dwelling on my childlessness. For the next several months, I didn't want to be heartbroken, sad-sack, infertile Erika; I wanted to recapture some of my pre-infertility carefree spirit and be thriving, enviable Erika -- great husband, great job, great cats, great house, weekend warrior, jet setter.
And I did, for the most part. The sadness of infertility was still there, in the background, but dull. Philip and I ran and boot-camped. We spent a weekend in New York City. I spoke at a wedding symposium in Saint Lucia. We bought a new car. We got invited to visit friends in Cartagena, Colombia, and on a whim booked tickets the day before Thanksgiving to fly out the day after. We spent Christmas with my whole family in Illinois, and we spent MLK Day in a tent in the Florida Everglades. It was a whirlwind, it was intense, it was gloriously distracting. All the while my eggs got older, but I was (mostly) too busy to think about it.
I said we'd revisit fertility treatment again in 2014, and we are. We are laying the groundwork for IVF, slowly checking off our clinic's prerequisites. We attended the seminar; I got tested for rubella immunity. Philip scheduled his labs, and I scheduled a hysteroscopy. We also switched doctors, a decision I feel good about.
I never wanted to need IVF. I claimed as an ignorant 29-year-old that I would never do it, that I'd "just adopt" if I ever found myself unable to get pregnant. I still don't want to need IVF. I'm giving acupuncture another go and pounding a crazy cocktail of vitamins, supplements and Chinese herbs in the hopes that I'll be one of those magical people you hear about who was "just about to start IVF" when they conceived out of the blue. Unlikely, but it can't hurt, right?
But now that I've (mostly) got my head around the idea and gotten the ball rolling, it's exasperating how slowly the process is going so far. More diagnostic surgery, more RE appointments, three weeks of birth control ... it's starting to look like it'll be summer before we really get this show on the road, and I'm impatient as hell.
And what about my infertility demons? My silent suffering? My perpetual state of resolution-less limbo? It's back in full effect, proportional in large part to how hard we're trying. The more treatments we undergo, the more money and effort we throw at this, the more failure hurts.
My friend Vicky says everyone has their crosses to bear, and she's allowed to say that to me because she had her second son only with the help of IVF. And it's true: Everyone suffers, one way or the other. I like to think my suffering is the worst kind, but it's not. Why am I so precious about infertility? Sure, it's a unique kind of pain, but isn't all pain unique?
I heard the stories of two friends (who already each have a child) who went through miscarriages -- a loss I've never had to bear, a loss that takes a toll not only on the emotions but also on the body in a very brutal, physical way. And while I cried for them, I also felt like something had been taken from me. No longer could I wear my pain badge like I'm the only survivor, the only strong one, the most afflicted. It's a horrible, shameful thing to admit, but it's the honest truth.
So have I become any wiser during my absence from this blog? I think yes, a little, but only because the passing months just allow more time for life to happen -- more babies were conceived and born (much to my great envy), but also: Other babies were lost, new friends came out as infertile, and on a broader scale, jobs were lost, marriages ended, houses were broken into, grandparents passed away. Everybody muddles through this life thing, and I've realized we need to celebrate when we can.
Then again, you're catching me on a good day, when I haven't cried or screamed or moped about infertility. :)
Sooooo, I'm back. As un-pregnant as ever, but not quite so angry. I've spent the last, hmm, let's see, seven months feeling pretty guilty about virtually yelling "Fuck everything and everyone!" and then dropping the microphone and disappearing off the face of the Internet. It's how I was feeling at the time, and honesty is good, but I could have said it all a little more nicely. For example, "Hi, kind people who actually spend their precious free time reading my ramblings, I think I need a little break from this."
So, I'm sorry. I apologize. I don't blame you if I'm talking to no one now, as you probably gave up checking to see if I've updated long ago.
For some reason I've been feeling the urge to write again. They say time heals all wounds, which isn't exactly true, but it does allow space for some reflection and distance from the injury. My thoughts have started to well up inside my brain once again, and I'm beginning to crave an outlet.
I was just so mad when that last IUI didn't work. Like just furious. It hurt so much more than any other disappointment we had faced thus far. I don't know why. And I just had to be done for awhile. I wanted to focus on my new position at work. I wanted to have a normal, festive holiday season -- not a miserable one dwelling on my childlessness. For the next several months, I didn't want to be heartbroken, sad-sack, infertile Erika; I wanted to recapture some of my pre-infertility carefree spirit and be thriving, enviable Erika -- great husband, great job, great cats, great house, weekend warrior, jet setter.
And I did, for the most part. The sadness of infertility was still there, in the background, but dull. Philip and I ran and boot-camped. We spent a weekend in New York City. I spoke at a wedding symposium in Saint Lucia. We bought a new car. We got invited to visit friends in Cartagena, Colombia, and on a whim booked tickets the day before Thanksgiving to fly out the day after. We spent Christmas with my whole family in Illinois, and we spent MLK Day in a tent in the Florida Everglades. It was a whirlwind, it was intense, it was gloriously distracting. All the while my eggs got older, but I was (mostly) too busy to think about it.
I said we'd revisit fertility treatment again in 2014, and we are. We are laying the groundwork for IVF, slowly checking off our clinic's prerequisites. We attended the seminar; I got tested for rubella immunity. Philip scheduled his labs, and I scheduled a hysteroscopy. We also switched doctors, a decision I feel good about.
I never wanted to need IVF. I claimed as an ignorant 29-year-old that I would never do it, that I'd "just adopt" if I ever found myself unable to get pregnant. I still don't want to need IVF. I'm giving acupuncture another go and pounding a crazy cocktail of vitamins, supplements and Chinese herbs in the hopes that I'll be one of those magical people you hear about who was "just about to start IVF" when they conceived out of the blue. Unlikely, but it can't hurt, right?
But now that I've (mostly) got my head around the idea and gotten the ball rolling, it's exasperating how slowly the process is going so far. More diagnostic surgery, more RE appointments, three weeks of birth control ... it's starting to look like it'll be summer before we really get this show on the road, and I'm impatient as hell.
And what about my infertility demons? My silent suffering? My perpetual state of resolution-less limbo? It's back in full effect, proportional in large part to how hard we're trying. The more treatments we undergo, the more money and effort we throw at this, the more failure hurts.
My friend Vicky says everyone has their crosses to bear, and she's allowed to say that to me because she had her second son only with the help of IVF. And it's true: Everyone suffers, one way or the other. I like to think my suffering is the worst kind, but it's not. Why am I so precious about infertility? Sure, it's a unique kind of pain, but isn't all pain unique?
I heard the stories of two friends (who already each have a child) who went through miscarriages -- a loss I've never had to bear, a loss that takes a toll not only on the emotions but also on the body in a very brutal, physical way. And while I cried for them, I also felt like something had been taken from me. No longer could I wear my pain badge like I'm the only survivor, the only strong one, the most afflicted. It's a horrible, shameful thing to admit, but it's the honest truth.
So have I become any wiser during my absence from this blog? I think yes, a little, but only because the passing months just allow more time for life to happen -- more babies were conceived and born (much to my great envy), but also: Other babies were lost, new friends came out as infertile, and on a broader scale, jobs were lost, marriages ended, houses were broken into, grandparents passed away. Everybody muddles through this life thing, and I've realized we need to celebrate when we can.
Then again, you're catching me on a good day, when I haven't cried or screamed or moped about infertility. :)
Saturday, August 24, 2013
LET'S GET RAW, FOLKS.
In light of this morning’s negative pregnancy test (which I
snapped in half* and threw across the bathroom at 5 a.m. this morning), and
also in view of some other thoughts I’ve been having lately, I’m considering
closing this blog. I’ll attempt to illuminate the reasons below.
1. First and foremost, I’m
sick of my business being everyone else’s business. The fact that everyone
is up in my business is my own doing, of course. From day one I have been very
open with people about the fact that we were trying, and as the months wore on
without success and we ventured into fertility treatment, I continued to share
our journey pretty candidly not only here but also in real life, both with
close friends and also not-so-close friends. Our families know; our pastor
knows; our sponsored child in Bolivia knows; even my old boss knew.
I have always been one to wear my heart on my sleeve. Philip
says I’m honest to a fault (for example, when giving someone a gift of free
swag I’ve received through my job as a magazine editor, I always compulsively confess
that the gift is free swag that I’ve received through my job as a magazine
editor). I don’t enjoy lying, I suck at lying, and I want to be known.
Infertility is the biggest thing going on my life, the thing most on my mind
and heart, and to not share it with people seems like I’m not revealing my true
self.
However, sometimes I want a little privacy in this whole
nasty business. I’m sick of explaining the damn difference between IUI and IVF.
Even before I started fertility treatments, I knew the difference between an
insemination and IVF.
I’m sick of being asked “where we are at” with everything
and trying to come up with a succinct answer. We are not anywhere that’s easily
described within a normal person’s attention span. We are somewhere in the
midst of the world’s completely broken, prohibitively expensive,
shockingly-low-success-rate infertility-treatment purgatory where the same tiny
handful of therapies is tried on the majority of patients because doctors are
satisfied with a completely BULLSHIT “diagnosis” of “unexplained” infertility.
People ask me all the time if the doctors have found
anything wrong, and I despise the answer I have to give them. Yes, they’ve
found a couple things wrong. My AMH hormone level is too high and I have
slightly irregular ovulation, so there’s some kind of hormonal imbalance going
on. And Philip’s sperms aren’t A+ either. But there’s nothing to be done about
these things apparently, other than just run us through the standard treatment
ringer: three medicated cycles of timed relations; three IUI cycles; IVF until
you’re broke and have lost your will to live.
So that’s where we are “at” as far as treatment, but then
there’s the emotional side of everything. Do you really want to hear about
that? Because it’s ugly. Really fucking ugly. I’m super sad. I’m exhausted. I’m
angry. I’m bitter. I’m obsessive. Being around pregnant people, even pregnant people I love dearly,
makes me want to gnash my teeth, and I don’t even know what that means. I hate
parties because pregnant people are always at them. I don’t want to be around
my friends’ small children; I don’t want to hear all my “mommy” friends compare
notes about their six-month-olds sleeping through the night; I don’t want to
see or hear one more pregnancy announcement for the rest of my life.
Other people’s joy makes me jealous and upset, and I feel
bad about that, and I’m sick of feeling bad about that. I dread the imminent
pregnancy announcements of all my friends who currently don’t have kids, of my
siblings, of my teenage cousins — even of other infertile strangers on the Internet,
which is really messed up. I see statistics about age and pregnancy rates and I
panic. I fight with my husband over infertility-related issues on a regular
basis. I feel like I will be the last person I know to ever start a family.
That is where I am at.
But of course I don’t say all of that, because I would sound
like a crazy person and I would make people uncomfortable and probably a lot of
people would judge me, because if you haven’t been in these infertile shoes,
there is no way for you to understand, try as you may. So I have to struggle to
find some acceptable answer about where we are at: a quick synopsis of where we
stand as far as treatment, a brave “I’m hanging in there!” to summarize how I’m
doing emotionally.
And I’m tired of doing that. For two out of every four
weeks, we are just waiting. Waiting to see if something worked. Doubtful that
it did. Anticipating the tears in the bathroom and the arduous rallying of
emotional reserves to try again.
But during every two-week wait, everyone else is so expectant
and optimistic. They have “good feelings” about this one. This will be “my
year.” And I know everyone cares about me and wants this for me, and of course
I don’t want to be met with my own cynicism, but I feel like a creep unless I
muster a weak smile and try to act as sure and happy and hopeful as everyone
else. And I’m tired of doing that.
But people’s sympathy and pity are no good either. I don’t
want people to feel sorry for me and think of me as that poor Erika, who’s going through this terrible trial, and I sure do
feel bad for her.
I just don’t want to talk about it anymore. Let’s talk about
my job, or my trip, or my cats — or better yet, let’s please talk about you.
2. I haven’t been
that honest on this blog. It’s largely for all the reasons stated above. I
don’t blog anonymously, and I have a lot of readers who aren’t infertile, so I
don’t want to alienate people or make them feel guilty or change people’s
perception of me in any negative way. But if I can’t be honest here, what’s the
point?
I started this blog to be a place to purge my feelings, but
it’s not a safe space for me to do that. Too many people who I interact with on
a daily basis have access to it. People at my workplace, including my new boss,
could easily enough find it via Twitter or Instagram. (One of the best things
about my new boss, by the way, is the fact that he doesn’t know about my
infertility, so it doesn’t color his perception of me at all. The pity, the
morbid curiosity, just aren’t there,
which is amazing.)
But if I can’t share it openly, that’s a problem too. I want
readers; I want this space to mean something. So I keep walking this line, and
even that is exhausting. I want to just verbally dump — and I think my
infertile readers want that too. Otherwise it’s too neatly packaged; the pretty
bow tied around everything where I say, It’s
all okay; I’m learning and growing so much from this experience, makes it
feel disingenuous and makes me sound way stronger and more at peace with
everything than I really am, and in turn makes my words unrelatable to the
readers who come around looking to see that we’re all struggling and lost, and
that’s normal, so at least we’re not alone. But I don’t feel the freedom to do
that.
3. This blog hasn’t
fostered the community I’d hoped it would. So many of the other infertile
bloggers I read, and whose Twitter/Instagram accounts I follow, seem to have
found these incredible support systems online — to the point where they’re sending each other care packages in the mail — and I have not found that at
all. Even though I’ve been at this TTC business for 2.5 years now, I still feel
like the new kid at school going, Hey guys, can I sit at your lunch table? And all
the seats are taken.
Again, this is probably my own doing. I’m not honest enough
here. I don’t write posts often enough. I don’t comment on other people’s blogs
enough. I don’t belong to any message boards; I don’t volunteer for Resolve; I
don’t post pictures of my pregnancy tests on Twitter asking if anyone else can
make out an evaporation line.
And a lot of that is due to reasons I’ve already stated, as
well as other insecurities. I feel too bogged down in my own story and misery
to be a voice ringing out for advocacy and community. I applied to be a
contributing blogger at The Infertility Voice and never heard a peep, which
made me feel like a failure and an outsider. Plus I just don’t have the time to
be keeping up with all of the above. I’ve got my non-virtual life to attend to:
work, social engagements, time with Philip, time with family, chores, car
shopping. I want to make a scrapbook for Carmen. I have trouble prioritizing it
all.
I realize that everyone who does keep up with all the Internet
“TTC sisterhood” friendship maintenance has all of those real-life commitments
too, so I’m just making excuses. And thankfully, I’ve got a handful of friends
in the flesh who are also going through infertility, so I don’t think the need
for me to find support through online means is as great.
But still, it’s felt tough and frustrating to try to break
into the conversation, and keeping up with the blog often feels like an extra
chore/burden, especially when I spend time on a post and don’t really get any
comments. If what I’m saying isn’t prompting anyone to respond or interact, was
it really worth saying?
4. I’m not sure why
people come here. Again, I’ve touched on this already, but just to
elucidate a little more: I know people are reading. I see in my blog stats that
some days I get as many as 40 or 50 page views. But because of the lack of
interaction, I don’t really know if people are finding what they’re looking
for.
I suspect that what brings a lot of people back is the
constant curiosity of: Is she gonna get pregnant this time? It’s a nice little
literary device, suspense, and I’ve got this handy ongoing conflict that keeps
my story juicy, but to those genuinely interested in me because they care about
me, I say: I’m tired of disappointing you month after month, and to the
voyeurs: I don’t want to be here purely for anyone’s entertainment. That said,
I do want my writing to be entertaining, but more than that, I want it to be
helpful.
I had a vision once for starting a website that would be the
Style Me Pretty of infertility sites. While sharing my own story, I could also
share inspirational images and quotes, fur-baby galleries, suggestions for
weekend getaways, and helpful advice related to infertility. It would be a
place for everyone to come together, as there doesn’t seem to be one central
resource. I discovered recently that Baby Hopeful is kind of already doing this
to an extent. And of course, every infertile alive knows about Stirrup Queens’
comprehensive blog roll.
I still think my idea is a good one, but it’s one that
requires more time (and, frankly, more heart) than I have to give it. Life
presented me with an exciting new job, not a dead end that might lead to a
freelance career with more time for personal projects. And since I still feel
so (at worst) bitter, miserable and (at best) ambivalent about infertility,
it’s hard to imagine creating something beautiful and positive out of this
experience.
Which, of course, makes the whole ordeal seem that much more
pointless. I met a girl at a big work conference last December, and of course,
I shared that I was infertile. (Why not broadcast it to the masses?) She told
me she had struggled for four years to get pregnant and did several failed
IUIs. All the while, she was wrestling with God over it and trying to find His
purposes. Finally she felt she had a spiritual breakthrough, and soon afterward
she got pregnant on her own. She now has two daughters. She told me, “Never
waste a good trial; press into God.”
I feel I am wasting this trial. I can’t find the redemption
in this. I can’t find the lessons I’m supposed to be learning. I can barely
even face God. I thought maybe this blog had something to do with the “reason”
behind it all — comforting others with the comfort I have received from God and
all that — but I don’t really see that happening, and I don’t have a vision for
it.
5. I think it might
be nice to have privacy as we begin the IVF process. Circling back to
number one, at the moment I’m very attracted to the idea of doing IVF in
private. When people ask me where we are at, I could just say we’re taking a
break — no having to explain the meds I’m on or report on the quality of our
embryos.
No follow-up questions like, When will you know if it worked? and, What are you going to do with all the embryos you don’t transfer?
No having to hear people use the wrong terminology like eggs being “harvested” or
embryos being “implanted.” No having to advise single friends on
whether or not it’s prudent to freeze your eggs (so tired of being a cautionary tale, and they’ll probably have no
issues getting pregnant at 40 anyway) or how much that costs (I don’t know). No
pressure to tell the waiting world the results. Sharing our news — whatever it
is — at our discretion and at our own pace.
It all sounds like such a dream right now, like such a giant
relief. Of course, I’m reacting to my current disappointment. A full year of treatment.
Infinite pills, shots, blood draws, speculums and vaginal ultrasounds.
Thousands and thousands of dollars. And I’ve got nothing to show for it. FUCK THAT. I’m ready to throw out the baby
with the bath water. Delete the blog; fire the doctor. Go into deep hiding.
And of course, there’s the valiant argument for infertility
awareness: The more I share my story, the more the world will understand, and the
less ostracized future infertiles will feel. But I just can’t worry about those
poor future infertiles right now, as, wet-faced, I cradle my little broken
heart in my hands at 7:51 a.m. on a Saturday morning.
* To be perfectly honest, the test would not neatly snap
into two pieces the way you see fresh celery do in commercials. Instead, the
hard plastic basically folded in half, which was not nearly as satisfying. And
the results still read just as clearly.
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