1. First and foremost, I’m
sick of my business being everyone else’s business. The fact that everyone
is up in my business is my own doing, of course. From day one I have been very
open with people about the fact that we were trying, and as the months wore on
without success and we ventured into fertility treatment, I continued to share
our journey pretty candidly not only here but also in real life, both with
close friends and also not-so-close friends. Our families know; our pastor
knows; our sponsored child in Bolivia knows; even my old boss knew.
I have always been one to wear my heart on my sleeve. Philip
says I’m honest to a fault (for example, when giving someone a gift of free
swag I’ve received through my job as a magazine editor, I always compulsively confess
that the gift is free swag that I’ve received through my job as a magazine
editor). I don’t enjoy lying, I suck at lying, and I want to be known.
Infertility is the biggest thing going on my life, the thing most on my mind
and heart, and to not share it with people seems like I’m not revealing my true
self.
However, sometimes I want a little privacy in this whole
nasty business. I’m sick of explaining the damn difference between IUI and IVF.
Even before I started fertility treatments, I knew the difference between an
insemination and IVF.
I’m sick of being asked “where we are at” with everything
and trying to come up with a succinct answer. We are not anywhere that’s easily
described within a normal person’s attention span. We are somewhere in the
midst of the world’s completely broken, prohibitively expensive,
shockingly-low-success-rate infertility-treatment purgatory where the same tiny
handful of therapies is tried on the majority of patients because doctors are
satisfied with a completely BULLSHIT “diagnosis” of “unexplained” infertility.
People ask me all the time if the doctors have found
anything wrong, and I despise the answer I have to give them. Yes, they’ve
found a couple things wrong. My AMH hormone level is too high and I have
slightly irregular ovulation, so there’s some kind of hormonal imbalance going
on. And Philip’s sperms aren’t A+ either. But there’s nothing to be done about
these things apparently, other than just run us through the standard treatment
ringer: three medicated cycles of timed relations; three IUI cycles; IVF until
you’re broke and have lost your will to live.
So that’s where we are “at” as far as treatment, but then
there’s the emotional side of everything. Do you really want to hear about
that? Because it’s ugly. Really fucking ugly. I’m super sad. I’m exhausted. I’m
angry. I’m bitter. I’m obsessive. Being around pregnant people, even pregnant people I love dearly,
makes me want to gnash my teeth, and I don’t even know what that means. I hate
parties because pregnant people are always at them. I don’t want to be around
my friends’ small children; I don’t want to hear all my “mommy” friends compare
notes about their six-month-olds sleeping through the night; I don’t want to
see or hear one more pregnancy announcement for the rest of my life.
Other people’s joy makes me jealous and upset, and I feel
bad about that, and I’m sick of feeling bad about that. I dread the imminent
pregnancy announcements of all my friends who currently don’t have kids, of my
siblings, of my teenage cousins — even of other infertile strangers on the Internet,
which is really messed up. I see statistics about age and pregnancy rates and I
panic. I fight with my husband over infertility-related issues on a regular
basis. I feel like I will be the last person I know to ever start a family.
That is where I am at.
But of course I don’t say all of that, because I would sound
like a crazy person and I would make people uncomfortable and probably a lot of
people would judge me, because if you haven’t been in these infertile shoes,
there is no way for you to understand, try as you may. So I have to struggle to
find some acceptable answer about where we are at: a quick synopsis of where we
stand as far as treatment, a brave “I’m hanging in there!” to summarize how I’m
doing emotionally.
And I’m tired of doing that. For two out of every four
weeks, we are just waiting. Waiting to see if something worked. Doubtful that
it did. Anticipating the tears in the bathroom and the arduous rallying of
emotional reserves to try again.
But during every two-week wait, everyone else is so expectant
and optimistic. They have “good feelings” about this one. This will be “my
year.” And I know everyone cares about me and wants this for me, and of course
I don’t want to be met with my own cynicism, but I feel like a creep unless I
muster a weak smile and try to act as sure and happy and hopeful as everyone
else. And I’m tired of doing that.
But people’s sympathy and pity are no good either. I don’t
want people to feel sorry for me and think of me as that poor Erika, who’s going through this terrible trial, and I sure do
feel bad for her.
I just don’t want to talk about it anymore. Let’s talk about
my job, or my trip, or my cats — or better yet, let’s please talk about you.
2. I haven’t been
that honest on this blog. It’s largely for all the reasons stated above. I
don’t blog anonymously, and I have a lot of readers who aren’t infertile, so I
don’t want to alienate people or make them feel guilty or change people’s
perception of me in any negative way. But if I can’t be honest here, what’s the
point?
I started this blog to be a place to purge my feelings, but
it’s not a safe space for me to do that. Too many people who I interact with on
a daily basis have access to it. People at my workplace, including my new boss,
could easily enough find it via Twitter or Instagram. (One of the best things
about my new boss, by the way, is the fact that he doesn’t know about my
infertility, so it doesn’t color his perception of me at all. The pity, the
morbid curiosity, just aren’t there,
which is amazing.)
But if I can’t share it openly, that’s a problem too. I want
readers; I want this space to mean something. So I keep walking this line, and
even that is exhausting. I want to just verbally dump — and I think my
infertile readers want that too. Otherwise it’s too neatly packaged; the pretty
bow tied around everything where I say, It’s
all okay; I’m learning and growing so much from this experience, makes it
feel disingenuous and makes me sound way stronger and more at peace with
everything than I really am, and in turn makes my words unrelatable to the
readers who come around looking to see that we’re all struggling and lost, and
that’s normal, so at least we’re not alone. But I don’t feel the freedom to do
that.
3. This blog hasn’t
fostered the community I’d hoped it would. So many of the other infertile
bloggers I read, and whose Twitter/Instagram accounts I follow, seem to have
found these incredible support systems online — to the point where they’re sending each other care packages in the mail — and I have not found that at
all. Even though I’ve been at this TTC business for 2.5 years now, I still feel
like the new kid at school going, Hey guys, can I sit at your lunch table? And all
the seats are taken.
Again, this is probably my own doing. I’m not honest enough
here. I don’t write posts often enough. I don’t comment on other people’s blogs
enough. I don’t belong to any message boards; I don’t volunteer for Resolve; I
don’t post pictures of my pregnancy tests on Twitter asking if anyone else can
make out an evaporation line.
And a lot of that is due to reasons I’ve already stated, as
well as other insecurities. I feel too bogged down in my own story and misery
to be a voice ringing out for advocacy and community. I applied to be a
contributing blogger at The Infertility Voice and never heard a peep, which
made me feel like a failure and an outsider. Plus I just don’t have the time to
be keeping up with all of the above. I’ve got my non-virtual life to attend to:
work, social engagements, time with Philip, time with family, chores, car
shopping. I want to make a scrapbook for Carmen. I have trouble prioritizing it
all.
I realize that everyone who does keep up with all the Internet
“TTC sisterhood” friendship maintenance has all of those real-life commitments
too, so I’m just making excuses. And thankfully, I’ve got a handful of friends
in the flesh who are also going through infertility, so I don’t think the need
for me to find support through online means is as great.
But still, it’s felt tough and frustrating to try to break
into the conversation, and keeping up with the blog often feels like an extra
chore/burden, especially when I spend time on a post and don’t really get any
comments. If what I’m saying isn’t prompting anyone to respond or interact, was
it really worth saying?
4. I’m not sure why
people come here. Again, I’ve touched on this already, but just to
elucidate a little more: I know people are reading. I see in my blog stats that
some days I get as many as 40 or 50 page views. But because of the lack of
interaction, I don’t really know if people are finding what they’re looking
for.
I suspect that what brings a lot of people back is the
constant curiosity of: Is she gonna get pregnant this time? It’s a nice little
literary device, suspense, and I’ve got this handy ongoing conflict that keeps
my story juicy, but to those genuinely interested in me because they care about
me, I say: I’m tired of disappointing you month after month, and to the
voyeurs: I don’t want to be here purely for anyone’s entertainment. That said,
I do want my writing to be entertaining, but more than that, I want it to be
helpful.
I had a vision once for starting a website that would be the
Style Me Pretty of infertility sites. While sharing my own story, I could also
share inspirational images and quotes, fur-baby galleries, suggestions for
weekend getaways, and helpful advice related to infertility. It would be a
place for everyone to come together, as there doesn’t seem to be one central
resource. I discovered recently that Baby Hopeful is kind of already doing this
to an extent. And of course, every infertile alive knows about Stirrup Queens’
comprehensive blog roll.
I still think my idea is a good one, but it’s one that
requires more time (and, frankly, more heart) than I have to give it. Life
presented me with an exciting new job, not a dead end that might lead to a
freelance career with more time for personal projects. And since I still feel
so (at worst) bitter, miserable and (at best) ambivalent about infertility,
it’s hard to imagine creating something beautiful and positive out of this
experience.
Which, of course, makes the whole ordeal seem that much more
pointless. I met a girl at a big work conference last December, and of course,
I shared that I was infertile. (Why not broadcast it to the masses?) She told
me she had struggled for four years to get pregnant and did several failed
IUIs. All the while, she was wrestling with God over it and trying to find His
purposes. Finally she felt she had a spiritual breakthrough, and soon afterward
she got pregnant on her own. She now has two daughters. She told me, “Never
waste a good trial; press into God.”
I feel I am wasting this trial. I can’t find the redemption
in this. I can’t find the lessons I’m supposed to be learning. I can barely
even face God. I thought maybe this blog had something to do with the “reason”
behind it all — comforting others with the comfort I have received from God and
all that — but I don’t really see that happening, and I don’t have a vision for
it.
5. I think it might
be nice to have privacy as we begin the IVF process. Circling back to
number one, at the moment I’m very attracted to the idea of doing IVF in
private. When people ask me where we are at, I could just say we’re taking a
break — no having to explain the meds I’m on or report on the quality of our
embryos.
No follow-up questions like, When will you know if it worked? and, What are you going to do with all the embryos you don’t transfer?
No having to hear people use the wrong terminology like eggs being “harvested” or
embryos being “implanted.” No having to advise single friends on
whether or not it’s prudent to freeze your eggs (so tired of being a cautionary tale, and they’ll probably have no
issues getting pregnant at 40 anyway) or how much that costs (I don’t know). No
pressure to tell the waiting world the results. Sharing our news — whatever it
is — at our discretion and at our own pace.
It all sounds like such a dream right now, like such a giant
relief. Of course, I’m reacting to my current disappointment. A full year of treatment.
Infinite pills, shots, blood draws, speculums and vaginal ultrasounds.
Thousands and thousands of dollars. And I’ve got nothing to show for it. FUCK THAT. I’m ready to throw out the baby
with the bath water. Delete the blog; fire the doctor. Go into deep hiding.
And of course, there’s the valiant argument for infertility
awareness: The more I share my story, the more the world will understand, and the
less ostracized future infertiles will feel. But I just can’t worry about those
poor future infertiles right now, as, wet-faced, I cradle my little broken
heart in my hands at 7:51 a.m. on a Saturday morning.
* To be perfectly honest, the test would not neatly snap
into two pieces the way you see fresh celery do in commercials. Instead, the
hard plastic basically folded in half, which was not nearly as satisfying. And
the results still read just as clearly.
13 comments:
I don't know if ever you are coming back to this blog to read this comment. But I would like to tell you that I really looked forward to your posts and the reason was because you seemed to write what I wished to but could never find the right words for. Eventhough it is very painful to me I want to respect your privacy and this decision of yours. But I really want you to make a promise to me. And please know that it is not curiosity or voyeurism that makes me ask you this. It is just that I feel so much closer to you in my heart and I feel like you are a sister to me that I never had. So please, if I'm not asking much out of you, do tell us when you finally find a way out of this hell that people of our kind (and our kind only) know too well. I'm sure that I'll also feel a bit jealous for you. But if I ever hear that you got what you yearned for I'll also feel happy for you.
Until then, I know i can't tell you to be happy. I just know that it is impossible for us coz world is not kind to us. So I'll just say take care. I'm not somebody who is comfortable praying to God. But everyday i'll send good vibrations your way. Here's to hoping that we'll finally meet someday in happier circumstances. With love Blue Rose
I always want to comment but I don't feel like my words mean anything - who am I? I can only imagine and what help is that? I read because you have a unique ability to make the words that I read give me a genuine glimpse of emotions and allow, for half a nanosecond, me to gain a little compassion or empathy from following your life. I'm not an infertile but I desperately, desperately want to have an idea how to comfort and encourage and be sad with the women in my life who know what it's like to be in your shoes (both of my sister-in-laws). You have a right to privacy and I, again, can only imagine how even that decision is filled with frustrations. Those of us cheering for you won't stop because you need space. Thanks from the bottom of my heart for letting us all in for so long.
I agree with Lindsey... I also feel like this blog is the way I still feel like our friendship exists. Crazy huh? I can't relate or give you words or quality time that will make things better, so all I can do is pray and read your words to get a better glimpse into your world. I will keep cheering too... even if you go into hiding. Love you friend.
And I agree with Lindsey and Heather! You are on my mind daily, and if you decide to close this door, I'll still be standing behind it cheering you on for as long as you need me there.
Love and prayers are being sent your way!
I've been reading for a few months now and have never commented before. Why? I'm not sure. Maybe like Lindsey said - I don't feel like my words would mean anything to you; I'm just a stranger struggling with infertility who can't even remember how I originally found your blog. But, you're a stranger to me and I check every work day to see if there is a new post (so maybe the stranger thing is complete BS?). I appreciate you sharing your journey and it truly helps me feel less alone (no one in my real life has fessed up to struggling). I definitely think you should do whatever you need to do, but please know that I (for one, and I'm sure there are many others like me) am truly appreciative of what you're doing in this space...
I don’t comment most of the time because I don’t have any words that can add anything to the conversation or bring comfort or wisdom. Plus I’m scared I’m going to F up and say something stupid. I can tell you with confidence that I’m in the “those who really care about you group” and I can tell you that the reason I’m reading is because I want to know how you’re doing and how I can pray for you and Phil. Plus, your writing is friggin amazing, and your honesty is not something that you find very often. I can’t relate on the experience, because I’m not going through it and can only imagine how hard it is. But I feel like I can connect on a human level. Your honesty about your feelings and your struggles makes me feel a little less alone in this whole being a human business. All this to say that I love that up to this point you’ve shared your story with us. It’s taught me a whole heck of a lot. I can totally understand you wanting to take the rest of this journey in private. I think I would want to also. Right now you need to just take care of yourself and do what you need to do to cope and be as okay as you can be. Like Linds and Heather said, we’ll keep praying and cheering you on either way.
Love you friend,
Carly
I've come back to this post wanting to comment, but I've been afraid that I really have nothing to add. I will just share that I desperately look forward to your posts-because they are real, and so, so well written, and because they speak to some profoundly human characteristics. The truth, whether its infertility, or any number of other trials, is that life is wicked hard, and you have found a rare balance of faith and doubt. It speaks to me and inspires me, even though our struggles are different.
I too am sad to see you want to stop writing on here but I also understand the privacy part. Just don't stop writing because you feel like you weren't helping anyone. I always look forward to your post. They make me feel like I am not alone in this horrible process. There were many times I would hand my phone to Michael and say "read Erika's blog, this is how I feel but can not figure out how to verbalize" But the issue is that I had been reading the blog so I didn't feel alone but I wasn't giving you any support in the process. I am sorry for that!! Know that your rawness is something I really value! It has challenged me a lot! The other reason I come here is because I so badly want you to get pregnant! I praying for you and want to be a support to you!
I too am sad to see you want to stop writing on here but I also understand the privacy part. Just don't stop writing because you feel like you weren't helping anyone. I always look forward to your post. They make me feel like I am not alone in this horrible process. There were many times I would hand my phone to Michael and say "read Erika's blog, this is how I feel but can not figure out how to verbalize" But the issue is that I had been reading the blog so I didn't feel alone but I wasn't giving you any support in the process. I am sorry for that!! Know that your rawness is something I really value! It has challenged me a lot! The other reason I come here is because I so badly want you to get pregnant! I praying for you and want to be a support to you!
Hey E-train, I check in on ya on your blog because I know this really beyond sucks (understatement) and the last thing you want to do is hear from another friend with a kid. I definitely don't want to cause you anymore pain my friend! Just wanted to tell you I love you and you have some voyeurs cheering you on. Be as private or as open as you want, and do it for you. XO -m
Hope you are doing well. Sending lots of good vibes your way :)
hii, wish i could hear from u. I still think of u and wish u all the best.
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